This Taskforce is concerned with guidelines, clinical practice recommendations, consensus papers, and diagnostic and therapeutic pathways in the field of rare kidney diseases.
The Taskforce members guide and support the Workgroups in the following tasks:
A consortium of 5 Health Technologies Assessment Agencies and 2 Specialized Health Training Institutions won the EC Tender No SANTE (2018/B3/030). They will provide assistance and support the ERNs in the development of CPGs.
An ERKNet Expert Panel has been formed comprised by clinical experts, patients representatives, methodologisty and representatives of the renal societies ERA-EDTA, ESPN and IPNA.
Dieter Haffner | Speaker |
Hannover, Germany, Hannover Medical School | » Ped. center |
Olivia Gillion-Boyer | Speaker |
Paris, France, Necker-Enfants Malades University Hospital | » Ped. center |
Antonia Bouts | Amsterdam, Netherlands, Amsterdam, Academic Medical Center (AMC) | » Ped. center | |
Jaap Groothoff | Amsterdam, Netherlands, Amsterdam, Academic Medical Center (AMC) | » Ped. center | |
Gema Ariceta | Barcelona, Spain, Hospital Universitari Vall d'Hebron | » Ped. center | |
Valentine Gillion | Brussels, Belgium, Cliniques universitaires Saint-Luc - UCL | » Adult center | |
Max Liebau | Cologne, Germany, University Hospital | » Ped. center | |
Lutz Weber | Cologne, Germany, University Hospital | » Ped. center | |
Anja Büscher | Essen, Germany, University Children`s Hospital | » Ped. center | |
Lorenzo Masieri | Florence, Italy, Meyer Children’s Hospital | » Ped. center | |
Paola Romagnani | Florence, Italy, Meyer Children’s Hospital | » Ped. center | |
Vera Cornelius | Heidelberg, Germany, University Hospital | » Ped. center | |
Stefanie Haeberle | Heidelberg, Germany, University Hospital | » Ped. center | |
Clémence Le Cornec | Heidelberg, Germany, University Hospital | » Ped. center | |
Franz Schaefer | Heidelberg, Germany, University Hospital | » Ped. center | |
Tanja Wlodkowski | Heidelberg, Germany, University Hospital | » Ped. center | |
Elke Wühl | Heidelberg, Germany, University Hospital | » Ped. center | |
Bert Bammens | Leuven, Belgium, University Hospitals Leuven | » Adult center | |
Elena Levtchenko | Leuven, Belgium, University Hospitals Leuven | » Ped. center | |
Justine Bacchetta | Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon | » Ped. center | |
Pierre Cochat | Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon | » Ped. center | |
Giovanni Montini | Milan, Italy, IRCCS Ca' Granda Ospedale Maggiore Policlinico | » Ped. center | |
Jens Koenig | Münster, Germany, University Hospital | » Ped. center | |
Rosa Vargas-Poussou | Paris, France, Hopital Europeen Georges Pompidou | » Ped. center | |
Aude Servais | Paris, France, Necker-Enfants Malades University Hospital | » Adult center | |
Marina Vivarelli | Rome, Italy, Rome, Bambino Gesù Children's Hospital | » Ped. center | |
Maria Herthelius | Stockholm, Sweden, Karolinska University Hospital | » Ped. center | |
Simone Baldovino | Turin, Italy, University of Torino-Ospedale HUB Torino Nord | » Adult center | |
Dario Roccatello | Turin, Italy, University of Torino-Ospedale HUB Torino Nord | » Adult center | |
Marc Lilien | Utrecht, Netherlands, University Medical Centre | » Ped. center | |
Antoine Labbe | External | Ophthalmology, Ambroise Paré hospital and Quinze-Vingt hospital, Paris | |
Rachel Lennon | External | Manchester, Manchester University Foundation Trust | |
Hong Liang | External | Ophtalmology, Quinze-Vingt hospital, Paris | |
Neil Sheerin | External | Newcastle, Royal Victoria Infirmary | |
Rukshana Shroff | External | London, Great Ormond Street Hospital |