Taskforce Guidelines & Pathways

This Taskforce is concerned with guidelines, clinical practice recommendations, consensus papers, and diagnostic and therapeutic pathways in the field of rare kidney diseases. 

The Taskforce members guide and support the Workgroups in the following tasks: 

  • Evaluation of existing guidance documents using standardized assessment methodology
  • Gap Analysis to identify disease areas in need of guidance documents 
  • Development of new guidelines using state of the art EBM methodology

NEW in June 2021 ! ERN Guideline Programme

A consortium of 5 Health Technologies Assessment Agencies and 2 Specialized Health Training Institutions won the EC Tender No SANTE (2018/B3/030). They will provide assistance and support the ERNs in the development of CPGs. 

An ERKNet Expert Panel has been formed comprised by clinical experts, patients representatives, methodologisty and representatives of the renal societies ERA-EDTA, ESPN and IPNA.

TaskForce Members

Dieter Haffner  Speaker
 Hannover, Germany, Hannover Medical School  » Ped. center
Olivia Gillion-Boyer  Speaker
 Paris, France, Necker-Enfants Malades University Hospital  » Ped. center
Antonia Bouts  Amsterdam, Netherlands, Amsterdam, Academic Medical Center (AMC)  » Ped. center
Jaap Groothoff  Amsterdam, Netherlands, Amsterdam, Academic Medical Center (AMC)  » Ped. center
Gema Ariceta  Barcelona, Spain, Hospital Universitari Vall d'Hebron  » Ped. center
Valentine Gillion  Brussels, Belgium, Cliniques universitaires Saint-Luc - UCL  » Adult center
Max Liebau  Cologne, Germany, University Hospital  » Ped. center
Lutz Weber  Cologne, Germany, University Hospital  » Ped. center
Anja Büscher  Essen, Germany, University Children`s Hospital  » Ped. center
Lorenzo Masieri  Florence, Italy, Meyer Children’s Hospital  » Ped. center
Paola Romagnani  Florence, Italy, Meyer Children’s Hospital  » Ped. center
Vera Cornelius  Heidelberg, Germany, University Hospital  » Ped. center
Stefanie Haeberle  Heidelberg, Germany, University Hospital  » Ped. center
Clémence Le Cornec  Heidelberg, Germany, University Hospital  » Ped. center
Franz Schaefer  Heidelberg, Germany, University Hospital  » Ped. center
Tanja Wlodkowski  Heidelberg, Germany, University Hospital  » Ped. center
Elke Wühl  Heidelberg, Germany, University Hospital  » Ped. center
Bert Bammens  Leuven, Belgium, University Hospitals Leuven  » Adult center
Elena Levtchenko  Leuven, Belgium, University Hospitals Leuven  » Ped. center
Justine Bacchetta  Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon  » Ped. center
Pierre Cochat  Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon  » Ped. center
Giovanni Montini  Milan, Italy, IRCCS Ca' Granda Ospedale Maggiore Policlinico  » Ped. center
Jens Koenig  Münster, Germany, University Hospital  » Ped. center
Rosa Vargas-Poussou  Paris, France, Hopital Europeen Georges Pompidou  » Ped. center
Aude Servais  Paris, France, Necker-Enfants Malades University Hospital  » Adult center
Marina Vivarelli  Rome, Italy, Rome, Bambino Gesù Children's Hospital  » Ped. center
Maria Herthelius  Stockholm, Sweden, Karolinska University Hospital  » Ped. center
Simone Baldovino  Turin, Italy, University of Torino-Ospedale HUB Torino Nord  » Adult center
Dario Roccatello  Turin, Italy, University of Torino-Ospedale HUB Torino Nord  » Adult center
Marc Lilien  Utrecht, Netherlands, University Medical Centre  » Ped. center
Antoine Labbe  External Ophthalmology, Ambroise Paré hospital and Quinze-Vingt hospital, Paris 
Rachel Lennon  External Manchester, Manchester University Foundation Trust 
Hong Liang  External Ophtalmology, Quinze-Vingt hospital, Paris 
Neil Sheerin  External Newcastle, Royal Victoria Infirmary 
Rukshana Shroff  External London, Great Ormond Street Hospital