QoL & Transition
Aims:
To measure and compare quality of life of children and adults PedsQL and HRQoL/KDQL with rare kidney diseases and to develop and validate improvement strategies.
To evaluate the actual situation of transition structures and financing in the ERKNet centers and to develop and implement transition guidelines.
Publication
Current management of transition of young people affected by rare renal conditions in the ERKNet
Martin Kreuzer1 ● Jens Drube1 ● Jenny Prüfe1 ● Franz Schaefer2 ● Lars Pape1 ● Members of the ERKNet Taskforce ‘QoL & Transition’
TaskForce Members
| Lars Pape | Speaker |
Essen, Germany, Essen University Children`s Hospital | » Ped. center |
| Gema Ariceta | Barcelona, Spain, Barcelona Hospital Universitari Vall d'Hebron | » Ped. center | |
| Stefanie Haeberle | Heidelberg, Germany, Heidelberg University Hospital | » Ped. center | |
| Franz Schaefer | Heidelberg, Germany, Heidelberg University Hospital | » Ped. center | |
| Tanja Wlodkowski | Heidelberg, Germany, Heidelberg University Hospital | » Ped. center | |
| Giovambattista Capasso | Naples, Italy, Naples UOC Nephrology and Dialysis - Università della Campania | » Adult center | |
| Francesco Trepiccione | Naples, Italy, Naples UOC Nephrology and Dialysis - Università della Campania | » Adult center | |
| Natalie Biebuyck | Paris, France, Paris Necker-Enfants Malades University Hospital | » Ped. center | |
| Idalina Beirao | Porto, Portugal, Porto Centro Hospitalar Universitário do Porto | » Adult center | |
| Maria do Sameiro Faria | Porto, Portugal, Porto Centro Hospitalar Universitário do Porto | » Ped. center | |
| Liliana Rocha | Porto, Portugal, Porto Centro Hospitalar Universitário do Porto | » Ped. center | |
| Charlotte Gimpel | External | University of Freiburg |