WG Meeting 04/11/2020
WG Meeting 05/05/2021
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Elena Levtchenko | Speaker |
Amsterdam, Netherlands, Amsterdam, Academic University Medical Center (AUMC) |
» Ped. center |
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Jaap Groothoff | Co-Chair |
Amsterdam, Netherlands, Amsterdam, Academic University Medical Center (AUMC) |
» Ped. center |
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Aude Servais | Co-Chair |
Paris, France, Necker-Enfants Malades University Hospital |
» Adult center |
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Arend Bokenkamp |
Amsterdam, Netherlands, Amsterdam, Academic University Medical Center (AUMC) |
» Ped. center | |
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Rik Olde Engberink |
Amsterdam, Netherlands, Amsterdam, Academic University Medical Center (AUMC) |
» Adult center | |
Sander Garrelfs |
Amsterdam, Netherlands, Amsterdam, Academic University Medical Center (AUMC) |
» Ped. center | ||
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Esteban Poch |
Barcelona, Spain, Hospital Clinic de Barcelona |
» Adult center | |
Vicente Torregrosa |
Barcelona, Spain, Hospital Clinic de Barcelona |
» Adult center | ||
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Pedro Arango Sancho |
Barcelona, Spain, Hospital San Joan de Deu |
» Ped. center | |
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Gema Ariceta |
Barcelona, Spain, Hospital Universitari Vall d'Hebron |
» Ped. center | |
Gema Ariceta |
Barcelona, Spain, Hospital Universitari Vall d'Hebron |
» Ped. center | ||
Kai-Uwe Eckardt |
Berlin, Germany, Charité - Universitätsmedizin Berlin |
» Adult center | ||
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Jan Halbritter |
Berlin, Germany, Charité - Universitätsmedizin Berlin |
» Adult center | |
Felix Knauf |
Berlin, Germany, Charité - Universitätsmedizin Berlin |
» Adult center | ||
Dominik Müller |
Berlin, Germany, Charité - Universitätsmedizin Berlin |
» Ped. center | ||
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Lise Allard |
Bordeaux, France, University Hospital |
» Ped. center | |
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Jerome Harambat |
Bordeaux, France, University Hospital |
» Ped. center | |
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Brigitte Llanas |
Bordeaux, France, University Hospital |
» Ped. center | |
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Olivier Devuyst |
Brussels, Belgium, Cliniques universitaires Saint-Luc - UCL |
» Adult center | |
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Valentine Gillion |
Brussels, Belgium, Cliniques universitaires Saint-Luc - UCL |
» Adult center | |
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Nathalie Godefroid |
Brussels, Belgium, Cliniques universitaires Saint-Luc - UCL |
» Adult center | |
Stephane Thiry |
Brussels, Belgium, Cliniques universitaires Saint-Luc - UCL |
» Adult center | ||
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Péter Reismann |
Budapest, Hungary, Semmelweis University |
» Adult center | |
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George Reusz |
Budapest, Hungary, Semmelweis University |
» Ped. center | |
Péter Sallay |
Budapest, Hungary, Semmelweis University |
» Ped. center | ||
Attila Szabó |
Budapest, Hungary, Semmelweis University |
» Ped. center | ||
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Kalman Tory |
Budapest, Hungary, Semmelweis University |
» Ped. center | |
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Sita Arjune |
Cologne, Germany, University Hospital |
» Adult center | |
Sören Bäumner |
Cologne, Germany, University Hospital |
» Ped. center | ||
Volker Burst |
Cologne, Germany, University Hospital |
» Adult center | ||
Christine Kurschat |
Cologne, Germany, University Hospital |
» Adult center | ||
Roman-Ulrich Mueller |
Cologne, Germany, University Hospital |
» Adult center | ||
Martin Egfjord |
Copenhagen, Denmark, Rigshospitalet University Hospital |
» Adult center | ||
Soeren Soerensen |
Copenhagen, Denmark, Rigshospitalet University Hospital |
» Adult center | ||
Peter J Conlon |
Dublin, Ireland, Beaumont Hospital |
» Adult center | ||
Atif Awan |
Dublin, Ireland, Children`s Health Ireland (CHI) at Temple Street |
» Ped. center | ||
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Lars Pape |
Essen, Germany, University Children`s Hospital |
» Ped. center | |
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Joke Dehoorne |
Ghent, Belgium, UZ Ghent |
» Ped. center | |
Agnieszka Prytula |
Ghent, Belgium, UZ Ghent |
» Ped. center | ||
Ann Raes |
Ghent, Belgium, UZ Ghent |
» Ped. center | ||
Arjen Van de Tol |
Ghent, Belgium, UZ Ghent |
» Adult center | ||
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Johan Vande Walle |
Ghent, Belgium, UZ Ghent |
» Ped. center | |
Jill Vanmassenhove |
Ghent, Belgium, UZ Ghent |
» Adult center | ||
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Stefan Berger |
Groningen, Netherlands, University Medical Center |
» Adult center | |
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Charlotte Bootsma |
Groningen, Netherlands, University Medical Center |
» Ped. center | |
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Charlotte Bootsma-Robroeks |
Groningen, Netherlands, University Medical Center |
» Ped. center | |
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Mark Eijgelsheim |
Groningen, Netherlands, University Medical Center |
» Adult center | |
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Casper Franssen |
Groningen, Netherlands, University Medical Center |
» Adult center | |
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Ron Gansevoort |
Groningen, Netherlands, University Medical Center |
» Adult center | |
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Coen Stegeman |
Groningen, Netherlands, University Medical Center |
» Adult center | |
Thomas Henne |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
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Anne Mühlig |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | |
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Jun Oh |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | |
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Raphael Schild |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | |
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Dieter Haffner |
Hannover, Germany, Hannover Medical School |
» Ped. center | |
Annette Wagner |
Hannover, Germany, Hannover Medical School |
» Adult center | ||
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Vera Cornelius |
Heidelberg, Germany, University Hospital |
» Ped. center | |
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Stefanie Haeberle |
Heidelberg, Germany, University Hospital |
» Ped. center | |
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Franz Schaefer |
Heidelberg, Germany, University Hospital |
» Ped. center | |
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Tanja Wlodkowski |
Heidelberg, Germany, University Hospital |
» Ped. center | |
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Detlef Bockenhauer |
Leuven, Belgium, University Hospitals Leuven |
» Ped. center | |
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Noel Knops |
Leuven, Belgium, University Hospitals Leuven |
» Ped. center | |
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Nina Battelino |
Ljubljana, Slovenia, University Medical Centre |
» Ped. center | |
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Tanja Kersnik Levart |
Ljubljana, Slovenia, University Medical Centre |
» Ped. center | |
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Anamarija Meglič |
Ljubljana, Slovenia, University Medical Centre |
» Ped. center | |
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Gregor Novljan |
Ljubljana, Slovenia, University Medical Centre |
» Ped. center | |
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Rina Rus |
Ljubljana, Slovenia, University Medical Centre |
» Ped. center | |
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Justine Bacchetta |
Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon |
» Ped. center | |
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Aurelia Bertholet-Thomas |
Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon |
» Ped. center | |
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Pierre Cochat |
Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon |
» Ped. center | |
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Anne-Laure Sellier-Leclerc |
Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon |
» Ped. center | |
Pilar Auñón |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Adult center | ||
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Mar Espino Hernandez |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Ped. center | |
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Eduardo Guiterrez |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Adult center | |
Julia Martin |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Ped. center | ||
Enrique Morales |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Adult center | ||
Marta Moreno |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Adult center | ||
Maria Teresa Sánchez |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Adult center | ||
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Angel Sevillano |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Adult center | |
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Denis Morin |
Montpellier, France, University Hospital |
» Ped. center | |
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Martin Konrad |
Münster, Germany, University Hospital |
» Ped. center | |
Karl Peter Schlingmann |
Münster, Germany, University Hospital |
» Ped. center | ||
Ernie Bongers |
Nijmegen, Netherlands, Radboud UMC |
» Adult center | ||
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Marlies Cornelissen |
Nijmegen, Netherlands, Radboud UMC |
» Ped. center | |
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Tom Nijenhuis |
Nijmegen, Netherlands, Radboud UMC |
» Adult center | |
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Lorenzo Calo |
Padua, Italy, Azienda Ospedaliera di Padova |
» Adult center | |
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Gianni Carraro |
Padua, Italy, Azienda Ospedaliera di Padova |
» Adult center | |
Germana Longo |
Padua, Italy, Azienda Ospedaliera di Padova |
» Ped. center | ||
Davide Meneghesso |
Padua, Italy, Azienda Ospedaliera di Padova |
» Ped. center | ||
Anne Blanchard |
Paris, France, Hopital Europeen Georges Pompidou |
» Adult center | ||
Marie Courbebaisse |
Paris, France, Hopital Europeen Georges Pompidou |
» Adult center | ||
Pascal Houillier |
Paris, France, Hopital Europeen Georges Pompidou |
» Adult center | ||
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Rosa Vargas-Poussou |
Paris, France, Hopital Europeen Georges Pompidou |
» Adult center | |
Claire Dossier |
Paris, France, Hospital Robert Debre |
» Ped. center | ||
Julien Hogan |
Paris, France, Hospital Robert Debre |
» Ped. center | ||
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Olivia Gillion-Boyer |
Paris, France, Necker-Enfants Malades University Hospital |
» Ped. center | |
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Bertrand Knebelmann |
Paris, France, Necker-Enfants Malades University Hospital |
» Adult center | |
Remi Salomon |
Paris, France, Necker-Enfants Malades University Hospital |
» Ped. center | ||
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Pietro Manuel Ferraro |
Rome, Italy, Gemelli Hospital |
» Adult center | |
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Giuseppe Grandaliano |
Rome, Italy, Gemelli Hospital |
» Adult center | |
Raffaele Manna |
Rome, Italy, Gemelli Hospital |
» Adult center | ||
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Francesco Emma |
Rome, Italy, Rome, Bambino Gesù Children's Hospital |
» Ped. center | |
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Katharina Hohenfellner |
Rosenheim, Germany, RoMed Klinikum Rosenheim |
» Ped. center | |
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Ulrike Treikauskas |
Rosenheim, Germany, RoMed Klinikum Rosenheim |
» Ped. center | |
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Ewout Hoorn |
Rotterdam, Netherlands, Erasmus MC: University Medical Center Rotterdam |
» Adult center | |
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Mahdi Salih |
Rotterdam, Netherlands, Erasmus MC: University Medical Center Rotterdam |
» Adult center | |
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Robert Zietse |
Rotterdam, Netherlands, Erasmus MC: University Medical Center Rotterdam |
» Adult center | |
Dominique Chauveau |
Toulouse, France, Toulouse, University Hospital |
» Adult center | ||
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Stephane Decramer |
Toulouse, France, Toulouse, University Hospital |
» Ped. center | |
Marion Vallet |
Toulouse, France, Toulouse, University Hospital |
» Ped. center | ||
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Luigi Biancone |
Turin, Italy, AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | |
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Elena Boaglio |
Turin, Italy, AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | |
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Manuel Burdese |
Turin, Italy, AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | |
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Caterina Dolla |
Turin, Italy, AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | |
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Roberta Giraudi |
Turin, Italy, AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | |
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Roberta Camilla |
Turin, Italy, AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | |
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Bruno Gianoglio |
Turin, Italy, AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | |
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Francesca Mattozzi |
Turin, Italy, AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | |
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Licia Peruzzi |
Turin, Italy, AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | |
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Silvia Pieretti |
Turin, Italy, AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | |
Mandy Keijzer-Veen |
Utrecht, Netherlands, University Medical Centre |
» Ped. center | ||
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Albertien vanEerde |
Utrecht, Netherlands, University Medical Centre |
» Ped. center | |
Sigita Anisko |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Adult center | ||
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Rimante Cerkauskiene |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Ped. center | |
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Augustina Jankauskiene |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Ped. center | |
Agne Kerpauskiene |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Adult center | ||
Marius Miglinas |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Adult center | ||
Arturas Vinikovas |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Adult center | ||
Detlef Bockenhauer | External | London, Royal Free Hospital | ||
Antoine Labbe | External | Ophthalmology, Ambroise Paré hospital and Quinze-Vingt hospital, Paris | ||
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Hong Liang | External | Ophtalmology, Quinze-Vingt hospital, Paris | |
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Shabbir Moochhala | External | London, Royal Free Hospital | |
Christoph Wanner | External | Nephrology, University Hospital Wuerzburg | ||
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Marjolein Bos | Patient representative | https://cystinose.nl (Cystinosis) | |
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Susana Carvajal Arjona | Patient representative | http://hipofam.org/ (Hypomagnesemia) | |
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Uwe Korst | Patient representative | Bundesverband Niere e.V. (Bundesverband-niere.de) | |
Claudia Sproedt | Patient representative | https://cystinose-selbsthilfe.de/ (Cystinosis) | ||
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David van Bennekom | Patient representative |