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Workgroup Thrombotic microangiopathies

Thrombotic microangiopathies

Understanding of the pathophysiology of thrombotic microangiopathies — a group of rare yet life-threatening hematologic conditions has evolved in recent years along with better access to diagnostic testing. Identifying secondary causes requires a thorough diagnostic workup, but appropriate treatment of the underlying condition usually leads to resolution.

For more information on Thrombotic microangiopathies visit our disease information Page 

 

 

Responsible Project Manager

Stefanie Häberle | stefanie.haeberle@med.uni-heidelberg.de

Meeting minutes

WG meeting 22 April 2021 (please login to your ERKNet member account to view the minutes)

WorkGroup Members

Nicole van de Kar  Speaker Nijmegen, Netherlands,
Nijmegen Radboud UMC  		» Ped. center
Marina Vivarelli  Co-Chair Rome, Italy,
Rome Bambino Gesù Children's Hospital  		» Ped. center
Savino Sciascia  Co-Chair Turin, Italy,
Turin University of Torino-Ospedale HUB Torino Nord  		» Adult center
David Kavanagh  External Newcastle, Royal Victoria Infirmary 
René Andersen  Aarhus, Denmark,
Aarhus University Hospital  		» Ped. center
Mia Faerch  Aarhus, Denmark,
Aarhus University Hospital  		» Ped. center
Soren Rittig  Aarhus, Denmark,
Aarhus University Hospital  		» Ped. center
Miquel Blasco  Barcelona, Spain,
Barcelona Hospital Clinic de Barcelona  		» Adult center
Pedro Arango Sancho  Barcelona, Spain,
Barcelona Hospital San Joan de Deu  		» Ped. center
  Alvaro Madrid  Barcelona, Spain,
Barcelona Hospital San Joan de Deu  		» Ped. center
Gema Ariceta  Barcelona, Spain,
Barcelona Hospital Universitari Vall d'Hebron  		» Ped. center
  Gema Ariceta  Barcelona, Spain,
Barcelona Hospital Universitari Vall d'Hebron  		» Ped. center
Loreto Gesualdo  Bari, Italy,
Bari AOU Consorziale policlinico di Bari-Ospedale Pediatrico Giovanni XXIII  		» Adult center
  Camillo Carrara  Bergamo, Italy,
Bergamo Azienda Ospedaliera Papa Giovanni XXIII  		» Adult center
  Piero Ruggenenti  Bergamo, Italy,
Bergamo Azienda Ospedaliera Papa Giovanni XXIII  		» Adult center
  Kai-Uwe Eckardt  Berlin, Germany,
Berlin Charité - Universitätsmedizin Berlin  		» Adult center
Jan Halbritter  Berlin, Germany,
Berlin Charité - Universitätsmedizin Berlin  		» Adult center
  Dominik Müller  Berlin, Germany,
Berlin Charité - Universitätsmedizin Berlin  		» Ped. center
  Adrian Schreiber  Berlin, Germany,
Berlin Charité - Universitätsmedizin Berlin  		» Adult center
  Evelyn Seelow  Berlin, Germany,
Berlin Charité - Universitätsmedizin Berlin  		» Adult center
  Yahsou Delmas  Bordeaux, France,
Bordeaux University Hospital  		» Adult center
Jerome Harambat  Bordeaux, France,
Bordeaux University Hospital  		» Ped. center
Brigitte Llanas  Bordeaux, France,
Bordeaux University Hospital  		» Ped. center
Nathalie Godefroid  Brussels, Belgium,
Brussels Cliniques universitaires Saint-Luc - UCL  		» Adult center
  Eric Goffin  Brussels, Belgium,
Brussels Cliniques universitaires Saint-Luc - UCL  		» Adult center
Johann Morelle  Brussels, Belgium,
Brussels Cliniques universitaires Saint-Luc - UCL  		» Adult center
Adrian Catalin Lungu  Bucharest, Romania,
Bucharest Fundeni Clinical Institute  		» Ped. center
George Reusz  Budapest, Hungary,
Budapest Semmelweis University  		» Ped. center
  Péter Sallay  Budapest, Hungary,
Budapest Semmelweis University  		» Ped. center
  Attila Szabo  Budapest, Hungary,
Budapest Semmelweis University  		» Ped. center
Kalman Tory  Budapest, Hungary,
Budapest Semmelweis University  		» Ped. center
Jan Ulrich Becker  Cologne, Germany,
Cologne University Hospital  		» Ped. center
Kathrin Burgmaier  Cologne, Germany,
Cologne University Hospital  		» Ped. center
  Volker Burst  Cologne, Germany,
Cologne University Hospital  		» Adult center
Sandra Habbig  Cologne, Germany,
Cologne University Hospital  		» Ped. center
Max Liebau  Cologne, Germany,
Cologne University Hospital  		» Ped. center
  Roman-Ulrich Mueller  Cologne, Germany,
Cologne University Hospital  		» Adult center
Lutz Weber  Cologne, Germany,
Cologne University Hospital  		» Ped. center
Mette Damholt  Copenhagen, Denmark,
Copenhagen Rigshospitalet University Hospital  		» Adult center
  Anne-Lise Kamper  Copenhagen, Denmark,
Copenhagen Rigshospitalet University Hospital  		» Adult center
Karl Emil Nelveg-Kristensen  Copenhagen, Denmark,
Copenhagen Rigshospitalet University Hospital  		» Adult center
Hanne Nørgaard  Copenhagen, Denmark,
Copenhagen Rigshospitalet University Hospital  		» Ped. center
Ida Maria Schmidt  Copenhagen, Denmark,
Copenhagen Rigshospitalet University Hospital  		» Ped. center
  Soeren Soerensen  Copenhagen, Denmark,
Copenhagen Rigshospitalet University Hospital  		» Adult center
  Wladimir Szpirt  Copenhagen, Denmark,
Copenhagen Rigshospitalet University Hospital  		» Adult center
  Agnieszka Jaskólska  Cracow, Poland,
University Children's Hospital of Cracow  		» Ped. center
  Monika Miklaszewska  Cracow, Poland,
University Children's Hospital of Cracow  		» Ped. center
Anna Moczulska  Cracow, Poland,
University Children's Hospital of Cracow  		» Ped. center
  Elżbieta Szczęsny-Choruz  Cracow, Poland,
University Children's Hospital of Cracow  		» Ped. center
  Katarzyna Zachwieja  Cracow, Poland,
University Children's Hospital of Cracow  		» Ped. center
  Peter J Conlon  Dublin, Ireland,
Dublin Beaumont Hospital  		» Adult center
  Atif Awan  Dublin, Ireland,
Dublin Children`s Health Ireland (CHI) at Temple Street  		» Ped. center
  Michael Wiesener  Erlangen, Germany,
Erlangen University Hospital  		» Adult center
Anja Büscher  Essen, Germany,
Essen University Children`s Hospital  		» Ped. center
Rainer Büscher  Essen, Germany,
Essen University Children`s Hospital  		» Ped. center
Lars Pape  Essen, Germany,
Essen University Children`s Hospital  		» Ped. center
Francesca Becherucci  Florence, Italy,
Florence Meyer Children’s Hospital IRCCS  		» Ped. center
Paola Romagnani  Florence, Italy,
Florence Meyer Children’s Hospital IRCCS  		» Ped. center
  Ann Raes  Ghent, Belgium,
Ghent UZ Ghent  		» Ped. center
  Thomas Renson  Ghent, Belgium,
Ghent UZ Ghent  		» Ped. center
  Evelien Snauwaert  Ghent, Belgium,
Ghent UZ Ghent  		» Ped. center
Johan Vande Walle  Ghent, Belgium,
Ghent UZ Ghent  		» Ped. center
  Jill Vanmassenhove  Ghent, Belgium,
Ghent UZ Ghent  		» Adult center
Mark Eijgelsheim  Groningen, Netherlands,
Groningen University Medical Center  		» Adult center
Casper Franssen  Groningen, Netherlands,
Groningen University Medical Center  		» Adult center
Coen Stegeman  Groningen, Netherlands,
Groningen University Medical Center  		» Adult center
Florian Grahammer  Hamburg, Germany,
Hamburg University Medical Center Hamburg-Eppendorf  		» Adult center
  Thomas Henne  Hamburg, Germany,
Hamburg University Medical Center Hamburg-Eppendorf  		» Ped. center
Tobias B. Huber  Hamburg, Germany,
Hamburg University Medical Center Hamburg-Eppendorf  		» Adult center
Christian Krebs  Hamburg, Germany,
Hamburg University Medical Center Hamburg-Eppendorf  		» Adult center
  Sebastian Loos  Hamburg, Germany,
Hamburg University Medical Center Hamburg-Eppendorf  		» Ped. center
Anne Mühlig  Hamburg, Germany,
Hamburg University Medical Center Hamburg-Eppendorf  		» Ped. center
Jun Oh  Hamburg, Germany,
Hamburg University Medical Center Hamburg-Eppendorf  		» Ped. center
Ulf Panzer  Hamburg, Germany,
Hamburg University Medical Center Hamburg-Eppendorf  		» Adult center
Raphael Schild  Hamburg, Germany,
Hamburg University Medical Center Hamburg-Eppendorf  		» Ped. center
  Jessica Kaufeld  Hannover, Germany,
Hannover Medical School  		» Adult center
Stefanie Haeberle  Heidelberg, Germany,
Heidelberg University Hospital  		» Ped. center
Franz Schaefer  Heidelberg, Germany,
Heidelberg University Hospital  		» Ped. center
Tanja Wlodkowski  Heidelberg, Germany,
Heidelberg University Hospital  		» Ped. center
  Juuso Tainio  Helsinki, Finland,
Helsinki Children´s Hospital, Helsinki University Hospital  		» Ped. center
  Elisa Ylinen  Helsinki, Finland,
Helsinki Children´s Hospital, Helsinki University Hospital  		» Ped. center
  Obbo Bredewold  Leiden, Netherlands,
Leiden University Medical Center  		» Adult center
  Wieneke Michels  Leiden, Netherlands,
Leiden University Medical Center  		» Adult center
Dorien Peters  Leiden, Netherlands,
Leiden University Medical Center  		» Adult center
  Antonius Rabelink  Leiden, Netherlands,
Leiden University Medical Center  		» Adult center
  Arghya Ray  Leiden, Netherlands,
Leiden University Medical Center  		» Adult center
  Joris Rotmans  Leiden, Netherlands,
Leiden University Medical Center  		» Adult center
  Siebe Spijker  Leiden, Netherlands,
Leiden University Medical Center  		» Adult center
  Y.K. Onno Teng  Leiden, Netherlands,
Leiden University Medical Center  		» Adult center
Kathleen Claes  Leuven, Belgium,
Leuven University Hospitals  		» Adult center
Noel Knops  Leuven, Belgium,
Leuven University Hospitals  		» Ped. center
Tanja Kersnik Levart  Ljubljana, Slovenia,
Ljubljana University Medical Centre  		» Ped. center
Anamarija Meglič  Ljubljana, Slovenia,
Ljubljana University Medical Centre  		» Ped. center
Gregor Novljan  Ljubljana, Slovenia,
Ljubljana University Medical Centre  		» Ped. center
Agnieszka Gach  Lodz, Poland,
Lodz Instytut  		» Ped. center
  Monika Pawlak-Bratkowska  Lodz, Poland,
Lodz Instytut  		» Ped. center
  Małgorzata Stańczyk  Lodz, Poland,
Lodz Instytut  		» Ped. center
Marcin Tkaczyk  Lodz, Poland,
Lodz Instytut  		» Ped. center
Pierre Cochat  Lyon, France,
Lyon Hôpital Femme Mère Enfant & Université de Lyon  		» Ped. center
Anne-Laure Sellier-Leclerc  Lyon, France,
Lyon Hôpital Femme Mère Enfant & Université de Lyon  		» Ped. center
Teresa Cavero  Madrid, Spain,
Madrid Hospital Universitario 12 de Octubre  		» Adult center
Eduardo Guiterrez  Madrid, Spain,
Madrid Hospital Universitario 12 de Octubre  		» Adult center
Joaquin Martinez  Madrid, Spain,
Madrid Hospital Universitario 12 de Octubre  		» Adult center
  Enrique Morales  Madrid, Spain,
Madrid Hospital Universitario 12 de Octubre  		» Adult center
Hernando Trujillo  Madrid, Spain,
Madrid Hospital Universitario 12 de Octubre  		» Adult center
  Gianluigi Ardissino  Milan, Italy,
Milan IRCCS Ca' Granda Ospedale Maggiore Policlinico  		» Ped. center
Valentina Capone  Milan, Italy,
Milan IRCCS Ca' Granda Ospedale Maggiore Policlinico  		» Ped. center
Sara Testa  Milan, Italy,
Milan IRCCS Ca' Granda Ospedale Maggiore Policlinico  		» Ped. center
Denis Morin  Montpellier, France,
Montpellier University Hospital  		» Ped. center
Martin Konrad  Münster, Germany,
Münster University Hospital  		» Ped. center
Ilaria Luongo  Naples, Italy,
Naples A.O. Santobono-Pausilipon  		» Ped. center
Gabriele Malgieri  Naples, Italy,
Naples A.O. Santobono-Pausilipon  		» Ped. center
Luigi Annicchiarico Petruzzelli  Naples, Italy,
Naples A.O. Santobono-Pausilipon  		» Ped. center
  Wilbert van der Meijden  Nijmegen, Netherlands,
Nijmegen Radboud UMC  		» Adult center
Jack Wetzels  Nijmegen, Netherlands,
Nijmegen Radboud UMC  		» Adult center
Mattia Parolin  Padua, Italy,
Padua Azienda Ospedaliera di Padova  		» Ped. center
  Enrico Vidal  Padua, Italy,
Padua Azienda Ospedaliera di Padova  		» Ped. center
  Thérésa Kwon  Paris, France,
Paris Hospital Robert Debre  		» Ped. center
Olivia Gillion-Boyer  Paris, France,
Paris Necker-Enfants Malades University Hospital  		» Ped. center
Aude Servais  Paris, France,
Paris Necker-Enfants Malades University Hospital  		» Adult center
  Laurent Mesnard  Paris, France,
Paris Tenon Hospital, Assistance Publique Hôpitaux de Paris  		» Adult center
Alena Parikova  Prague, Czech Republic,
Prague Institute for Clinical and Experimental Medicine IKEM Prague  		» Adult center
Silvie Rajnochova-Bloudickova  Prague, Czech Republic,
Prague Institute for Clinical and Experimental Medicine IKEM Prague  		» Adult center
Janka Slatinska  Prague, Czech Republic,
Prague Institute for Clinical and Experimental Medicine IKEM Prague  		» Adult center
Ondrej Viklicky  Prague, Czech Republic,
Prague Institute for Clinical and Experimental Medicine IKEM Prague  		» Adult center
Martin Bezdicka  Prague, Czech Republic,
Prague University Hospital Motol  		» Ped. center
Nadezda Simankova  Prague, Czech Republic,
Prague University Hospital Motol  		» Ped. center
  Dana Thomasova  Prague, Czech Republic,
Prague University Hospital Motol  		» Ped. center
Jakub Zieg  Prague, Czech Republic,
Prague University Hospital Motol  		» Ped. center
Francesco Emma  Rome, Italy,
Rome Bambino Gesù Children's Hospital  		» Ped. center
Rocco Baccaro  Rome, Italy,
Rome Gemelli Hospital  		» Adult center
Giuseppe Grandaliano  Rome, Italy,
Rome Gemelli Hospital  		» Adult center
  Alessandro Naticchia  Rome, Italy,
Rome Gemelli Hospital  		» Adult center
Francesco Pesce  Rome, Italy,
Rome Gemelli Hospital  		» Adult center
  Margherita Baldassarri  Siena, Italy,
Siena University Hospital  		» Adult center
  Andrea Guarnieri  Siena, Italy,
Siena University Hospital  		» Adult center
Anna Maria Pinto  Siena, Italy,
Siena University Hospital  		» Adult center
  Alessandra Renieri  Siena, Italy,
Siena University Hospital  		» Adult center
Stephane Decramer  Toulouse, France,
Toulouse University Hospital  		» Ped. center
  Stanislas Faguer  Toulouse, France,
Toulouse University Hospital  		» Adult center
  David Ribes  Toulouse, France,
Toulouse University Hospital  		» Adult center
Thomas Simon  Toulouse, France,
Toulouse University Hospital  		» Ped. center
Stephanie Tellier  Toulouse, France,
Toulouse University Hospital  		» Ped. center
Luigi Biancone  Turin, Italy,
Turin AOU Città della Salute e della Scienza di Torino - Molinette Hospital  		» Adult center
Elena Boaglio  Turin, Italy,
Turin AOU Città della Salute e della Scienza di Torino - Molinette Hospital  		» Adult center
Manuel Burdese  Turin, Italy,
Turin AOU Città della Salute e della Scienza di Torino - Molinette Hospital  		» Adult center
Caterina Dolla  Turin, Italy,
Turin AOU Città della Salute e della Scienza di Torino - Molinette Hospital  		» Adult center
Roberta Giraudi  Turin, Italy,
Turin AOU Città della Salute e della Scienza di Torino - Molinette Hospital  		» Adult center
Roberta Camilla  Turin, Italy,
Turin AOU CSS di Torino - Regina Margherita Hospital  		» Ped. center
Bruno Gianoglio  Turin, Italy,
Turin AOU CSS di Torino - Regina Margherita Hospital  		» Ped. center
Francesca Mattozzi  Turin, Italy,
Turin AOU CSS di Torino - Regina Margherita Hospital  		» Ped. center
Licia Peruzzi  Turin, Italy,
Turin AOU CSS di Torino - Regina Margherita Hospital  		» Ped. center
Silvia Pieretti  Turin, Italy,
Turin AOU CSS di Torino - Regina Margherita Hospital  		» Ped. center
Emanuele de Simone  Turin, Italy,
Turin University of Torino-Ospedale HUB Torino Nord  		» Adult center
Roberta Fenoglio  Turin, Italy,
Turin University of Torino-Ospedale HUB Torino Nord  		» Adult center
Dario Roccatello  Turin, Italy,
Turin University of Torino-Ospedale HUB Torino Nord  		» Adult center
  Mandy Keijzer-Veen  Utrecht, Netherlands,
Utrecht University Medical Centre  		» Ped. center
Arjan vanZuilen  Utrecht, Netherlands,
Utrecht University Medical Centre  		» Adult center
Karolis Azukaitis  Vilnius, Lithuania,
Vilnius University Hospital Santaros Klinikos  		» Ped. center
  Ernesta Macioniene  Vilnius, Lithuania,
Vilnius University Hospital Santaros Klinikos  		» Adult center
  Marius Miglinas  Vilnius, Lithuania,
Vilnius University Hospital Santaros Klinikos  		» Adult center
  Birute Tumiene  Vilnius, Lithuania,
Vilnius University Hospital Santaros Klinikos  		» Adult center
  Arturas Vinikovas  Vilnius, Lithuania,
Vilnius University Hospital Santaros Klinikos  		» Adult center
  Daniel Gale  External Royal Free London 
  Christoph Licht  External University of Toronto, Division of Nephrology 
Michal Malina  External Newcastle, Royal Victoria Infirmary 
  Candice Roufosse  External Imperial College London, Cellular Pathology 
Neil Sheerin  External Newcastle, Royal Victoria Infirmary 
Susana Carvajal Arjona  Patient representative http://hipofam.org/ (Hypomagnesemia) 
  Renée de Wildt  Patient representative Nierpatienten Vereniging Nederland https://www.nvn.nl/ 
Uwe Korst  Patient representative Bundesverband Niere e.V. (Bundesverband-niere.de) 
  Christiane Mockenhaupt  Patient representative  
Francisco Monfort  Patient representative https://ashua.es/ (aHUS) 
  Mireya Vicenta Rios Carratala  Patient representative ASHUA, Spain