Understanding of the pathophysiology of thrombotic microangiopathies — a group of rare yet life-threatening hematologic conditions has evolved in recent years along with better access to diagnostic testing. Identifying secondary causes requires a thorough diagnostic workup, but appropriate treatment of the underlying condition usually leads to resolution.
WG meeting 22 April 2021 (please login to your ERKNet member account to view the minutes)
Nicole van de Kar | Speaker |
Nijmegen, Netherlands, Radboud UMC |
» Ped. center | |
Marina Vivarelli | Co-Chair |
Rome, Italy, Rome, Bambino Gesù Children's Hospital |
» Ped. center | |
Savino Sciascia | Co-Chair |
Turin, Italy, University of Torino-Ospedale HUB Torino Nord |
» Adult center | |
David Kavanagh | External | Newcastle, Royal Victoria Infirmary | ||
René Andersen |
Aarhus, Denmark, University Hospital |
» Ped. center | ||
Mia Faerch |
Aarhus, Denmark, University Hospital |
» Ped. center | ||
Soren Rittig |
Aarhus, Denmark, University Hospital |
» Ped. center | ||
Miquel Blasco |
Barcelona, Spain, Hospital Clinic de Barcelona |
» Adult center | ||
Pedro Arango Sancho |
Barcelona, Spain, Hospital San Joan de Deu |
» Ped. center | ||
Alvaro Madrid |
Barcelona, Spain, Hospital San Joan de Deu |
» Ped. center | ||
Gema Ariceta |
Barcelona, Spain, Hospital Universitari Vall d'Hebron |
» Ped. center | ||
Gema Ariceta |
Barcelona, Spain, Hospital Universitari Vall d'Hebron |
» Ped. center | ||
Loreto Gesualdo |
Bari, Italy, AOU Consorziale policlinico di Bari-Ospedale Pediatrico Giovanni XXIII |
» Adult center | ||
Camillo Carrara |
Bergamo, Italy, Azienda Ospedaliera Papa Giovanni XXIII |
» Adult center | ||
Piero Ruggenenti |
Bergamo, Italy, Azienda Ospedaliera Papa Giovanni XXIII |
» Adult center | ||
Kai-Uwe Eckardt |
Berlin, Germany, Charité - Universitätsmedizin Berlin |
» Adult center | ||
Jan Halbritter |
Berlin, Germany, Charité - Universitätsmedizin Berlin |
» Adult center | ||
Dominik Müller |
Berlin, Germany, Charité - Universitätsmedizin Berlin |
» Ped. center | ||
Adrian Schreiber |
Berlin, Germany, Charité - Universitätsmedizin Berlin |
» Adult center | ||
Evelyn Seelow |
Berlin, Germany, Charité - Universitätsmedizin Berlin |
» Adult center | ||
Yahsou Delmas |
Bordeaux, France, University Hospital |
» Adult center | ||
Jerome Harambat |
Bordeaux, France, University Hospital |
» Ped. center | ||
Brigitte Llanas |
Bordeaux, France, University Hospital |
» Ped. center | ||
Nathalie Godefroid |
Brussels, Belgium, Cliniques universitaires Saint-Luc - UCL |
» Adult center | ||
Eric Goffin |
Brussels, Belgium, Cliniques universitaires Saint-Luc - UCL |
» Adult center | ||
Johann Morelle |
Brussels, Belgium, Cliniques universitaires Saint-Luc - UCL |
» Adult center | ||
Adrian Catalin Lungu |
Bucharest, Romania, Fundeni Clinical Institute |
» Ped. center | ||
George Reusz |
Budapest, Hungary, Semmelweis University |
» Ped. center | ||
Péter Sallay |
Budapest, Hungary, Semmelweis University |
» Ped. center | ||
Attila Szabo |
Budapest, Hungary, Semmelweis University |
» Ped. center | ||
Kalman Tory |
Budapest, Hungary, Semmelweis University |
» Ped. center | ||
Jan Ulrich Becker |
Cologne, Germany, University Hospital |
» Ped. center | ||
Kathrin Burgmaier |
Cologne, Germany, University Hospital |
» Ped. center | ||
Volker Burst |
Cologne, Germany, University Hospital |
» Adult center | ||
Sandra Habbig |
Cologne, Germany, University Hospital |
» Ped. center | ||
Max Liebau |
Cologne, Germany, University Hospital |
» Ped. center | ||
Roman-Ulrich Mueller |
Cologne, Germany, University Hospital |
» Adult center | ||
Lutz Weber |
Cologne, Germany, University Hospital |
» Ped. center | ||
Mette Damholt |
Copenhagen, Denmark, Rigshospitalet University Hospital |
» Adult center | ||
Anne-Lise Kamper |
Copenhagen, Denmark, Rigshospitalet University Hospital |
» Adult center | ||
Karl Emil Nelveg-Kristensen |
Copenhagen, Denmark, Rigshospitalet University Hospital |
» Adult center | ||
Hanne Nørgaard |
Copenhagen, Denmark, Rigshospitalet University Hospital |
» Ped. center | ||
Ida Maria Schmidt |
Copenhagen, Denmark, Rigshospitalet University Hospital |
» Ped. center | ||
Soeren Soerensen |
Copenhagen, Denmark, Rigshospitalet University Hospital |
» Adult center | ||
Wladimir Szpirt |
Copenhagen, Denmark, Rigshospitalet University Hospital |
» Adult center | ||
Agnieszka Jaskólska |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Monika Miklaszewska |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Anna Moczulska |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Elżbieta Szczęsny-Choruz |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Katarzyna Zachwieja |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Peter J Conlon |
Dublin, Ireland, Beaumont Hospital |
» Adult center | ||
Atif Awan |
Dublin, Ireland, Children`s Health Ireland (CHI) at Temple Street |
» Ped. center | ||
Michael Wiesener |
Erlangen, Germany, University Hospital |
» Adult center | ||
Anja Büscher |
Essen, Germany, University Children`s Hospital |
» Ped. center | ||
Rainer Büscher |
Essen, Germany, University Children`s Hospital |
» Ped. center | ||
Lars Pape |
Essen, Germany, University Children`s Hospital |
» Ped. center | ||
Francesca Becherucci |
Florence, Italy, Meyer Children’s Hospital IRCCS |
» Ped. center | ||
Paola Romagnani |
Florence, Italy, Meyer Children’s Hospital IRCCS |
» Ped. center | ||
Ann Raes |
Ghent, Belgium, UZ Ghent |
» Ped. center | ||
Thomas Renson |
Ghent, Belgium, UZ Ghent |
» Ped. center | ||
Evelien Snauwaert |
Ghent, Belgium, UZ Ghent |
» Ped. center | ||
Johan Vande Walle |
Ghent, Belgium, UZ Ghent |
» Ped. center | ||
Jill Vanmassenhove |
Ghent, Belgium, UZ Ghent |
» Adult center | ||
Mark Eijgelsheim |
Groningen, Netherlands, University Medical Center |
» Adult center | ||
Casper Franssen |
Groningen, Netherlands, University Medical Center |
» Adult center | ||
Coen Stegeman |
Groningen, Netherlands, University Medical Center |
» Adult center | ||
Florian Grahammer |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Adult center | ||
Thomas Henne |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
Tobias B. Huber |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Adult center | ||
Christian Krebs |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Adult center | ||
Sebastian Loos |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
Anne Mühlig |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
Jun Oh |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
Ulf Panzer |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Adult center | ||
Raphael Schild |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
Jessica Kaufeld |
Hannover, Germany, Hannover Medical School |
» Adult center | ||
Stefanie Haeberle |
Heidelberg, Germany, University Hospital |
» Ped. center | ||
Franz Schaefer |
Heidelberg, Germany, University Hospital |
» Ped. center | ||
Tanja Wlodkowski |
Heidelberg, Germany, University Hospital |
» Ped. center | ||
Juuso Tainio |
Helsinki, Finland, Children´s Hospital, Helsinki University Hospital |
» Ped. center | ||
Elisa Ylinen |
Helsinki, Finland, Children´s Hospital, Helsinki University Hospital |
» Ped. center | ||
Obbo Bredewold |
Leiden, Netherlands, Leiden University Medical Center |
» Adult center | ||
Wieneke Michels |
Leiden, Netherlands, Leiden University Medical Center |
» Adult center | ||
Dorien Peters |
Leiden, Netherlands, Leiden University Medical Center |
» Adult center | ||
Antonius Rabelink |
Leiden, Netherlands, Leiden University Medical Center |
» Adult center | ||
Arghya Ray |
Leiden, Netherlands, Leiden University Medical Center |
» Adult center | ||
Joris Rotmans |
Leiden, Netherlands, Leiden University Medical Center |
» Adult center | ||
Siebe Spijker |
Leiden, Netherlands, Leiden University Medical Center |
» Adult center | ||
Y.K. Onno Teng |
Leiden, Netherlands, Leiden University Medical Center |
» Adult center | ||
Kathleen Claes |
Leuven, Belgium, University Hospitals Leuven |
» Adult center | ||
Noel Knops |
Leuven, Belgium, University Hospitals Leuven |
» Ped. center | ||
Tanja Kersnik Levart |
Ljubljana, Slovenia, University Medical Centre |
» Ped. center | ||
Anamarija Meglič |
Ljubljana, Slovenia, University Medical Centre |
» Ped. center | ||
Gregor Novljan |
Ljubljana, Slovenia, University Medical Centre |
» Ped. center | ||
Agnieszka Gach |
Lodz, Poland, Instytut |
» Ped. center | ||
Monika Pawlak-Bratkowska |
Lodz, Poland, Instytut |
» Ped. center | ||
Małgorzata Stańczyk |
Lodz, Poland, Instytut |
» Ped. center | ||
Marcin Tkaczyk |
Lodz, Poland, Instytut |
» Ped. center | ||
Pierre Cochat |
Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon |
» Ped. center | ||
Anne-Laure Sellier-Leclerc |
Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon |
» Ped. center | ||
Teresa Cavero |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Adult center | ||
Eduardo Guiterrez |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Adult center | ||
Joaquin Martinez |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Adult center | ||
Enrique Morales |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Adult center | ||
Hernando Trujillo |
Madrid, Spain, Hospital Universitario 12 de Octubre |
» Adult center | ||
Gianluigi Ardissino |
Milan, Italy, IRCCS Ca' Granda Ospedale Maggiore Policlinico |
» Ped. center | ||
Valentina Capone |
Milan, Italy, IRCCS Ca' Granda Ospedale Maggiore Policlinico |
» Ped. center | ||
Sara Testa |
Milan, Italy, IRCCS Ca' Granda Ospedale Maggiore Policlinico |
» Ped. center | ||
Denis Morin |
Montpellier, France, University Hospital |
» Ped. center | ||
Martin Konrad |
Münster, Germany, University Hospital |
» Ped. center | ||
Ilaria Luongo |
Naples, Italy, A.O. Santobono-Pausilipon |
» Ped. center | ||
Gabriele Malgieri |
Naples, Italy, A.O. Santobono-Pausilipon |
» Ped. center | ||
Luigi Annicchiarico Petruzzelli |
Naples, Italy, A.O. Santobono-Pausilipon |
» Ped. center | ||
Wilbert van der Meijden |
Nijmegen, Netherlands, Radboud UMC |
» Adult center | ||
Jack Wetzels |
Nijmegen, Netherlands, Radboud UMC |
» Adult center | ||
Mattia Parolin |
Padua, Italy, Azienda Ospedaliera di Padova |
» Ped. center | ||
Enrico Vidal |
Padua, Italy, Azienda Ospedaliera di Padova |
» Ped. center | ||
Thérésa Kwon |
Paris, France, Hospital Robert Debre |
» Ped. center | ||
Olivia Gillion-Boyer |
Paris, France, Necker-Enfants Malades University Hospital |
» Ped. center | ||
Aude Servais |
Paris, France, Necker-Enfants Malades University Hospital |
» Adult center | ||
Laurent Mesnard |
Paris, France, Tenon Hospital, Assistance Publique Hôpitaux de Paris |
» Adult center | ||
Alena Parikova |
Prague, Czech Republic, Institute for Clinical and Experimental Medicine IKEM Prague |
» Adult center | ||
Silvie Rajnochova-Bloudickova |
Prague, Czech Republic, Institute for Clinical and Experimental Medicine IKEM Prague |
» Adult center | ||
Janka Slatinska |
Prague, Czech Republic, Institute for Clinical and Experimental Medicine IKEM Prague |
» Adult center | ||
Ondrej Viklicky |
Prague, Czech Republic, Institute for Clinical and Experimental Medicine IKEM Prague |
» Adult center | ||
Martin Bezdicka |
Prague, Czech Republic, University Hospital Motol |
» Ped. center | ||
Nadezda Simankova |
Prague, Czech Republic, University Hospital Motol |
» Ped. center | ||
Dana Thomasova |
Prague, Czech Republic, University Hospital Motol |
» Ped. center | ||
Jakub Zieg |
Prague, Czech Republic, University Hospital Motol |
» Ped. center | ||
Rocco Baccaro |
Rome, Italy, Gemelli Hospital |
» Adult center | ||
Giuseppe Grandaliano |
Rome, Italy, Gemelli Hospital |
» Adult center | ||
Alessandro Naticchia |
Rome, Italy, Gemelli Hospital |
» Adult center | ||
Francesco Pesce |
Rome, Italy, Gemelli Hospital |
» Adult center | ||
Francesco Emma |
Rome, Italy, Rome, Bambino Gesù Children's Hospital |
» Ped. center | ||
Margherita Baldassarri |
Siena, Italy, University Hospital |
» Adult center | ||
Andrea Guarnieri |
Siena, Italy, University Hospital |
» Adult center | ||
Anna Maria Pinto |
Siena, Italy, University Hospital |
» Adult center | ||
Alessandra Renieri |
Siena, Italy, University Hospital |
» Adult center | ||
Stephane Decramer |
Toulouse, France, Toulouse, University Hospital |
» Ped. center | ||
Stanislas Faguer |
Toulouse, France, Toulouse, University Hospital |
» Adult center | ||
David Ribes |
Toulouse, France, Toulouse, University Hospital |
» Adult center | ||
Thomas Simon |
Toulouse, France, Toulouse, University Hospital |
» Ped. center | ||
Stephanie Tellier |
Toulouse, France, Toulouse, University Hospital |
» Ped. center | ||
Luigi Biancone |
Turin, Italy, AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | ||
Elena Boaglio |
Turin, Italy, AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | ||
Manuel Burdese |
Turin, Italy, AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | ||
Caterina Dolla |
Turin, Italy, AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | ||
Roberta Giraudi |
Turin, Italy, AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | ||
Roberta Camilla |
Turin, Italy, AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | ||
Bruno Gianoglio |
Turin, Italy, AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | ||
Francesca Mattozzi |
Turin, Italy, AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | ||
Licia Peruzzi |
Turin, Italy, AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | ||
Silvia Pieretti |
Turin, Italy, AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | ||
Emanuele de Simone |
Turin, Italy, University of Torino-Ospedale HUB Torino Nord |
» Adult center | ||
Roberta Fenoglio |
Turin, Italy, University of Torino-Ospedale HUB Torino Nord |
» Adult center | ||
Dario Roccatello |
Turin, Italy, University of Torino-Ospedale HUB Torino Nord |
» Adult center | ||
Mandy Keijzer-Veen |
Utrecht, Netherlands, University Medical Centre |
» Ped. center | ||
Arjan vanZuilen |
Utrecht, Netherlands, University Medical Centre |
» Adult center | ||
Karolis Azukaitis |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Ped. center | ||
Ernesta Macioniene |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Adult center | ||
Marius Miglinas |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Adult center | ||
Birute Tumiene |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Adult center | ||
Arturas Vinikovas |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Adult center | ||
Daniel Gale | External | Royal Free London | ||
Christoph Licht | External | University of Toronto, Division of Nephrology | ||
Michal Malina | External | Newcastle, Royal Victoria Infirmary | ||
Candice Roufosse | External | Imperial College London, Cellular Pathology | ||
Neil Sheerin | External | Newcastle, Royal Victoria Infirmary | ||
Susana Carvajal Arjona | Patient representative | http://hipofam.org/ (Hypomagnesemia) | ||
Renée de Wildt | Patient representative | Nierpatienten Vereniging Nederland https://www.nvn.nl/ | ||
Uwe Korst | Patient representative | Bundesverband Niere e.V. (Bundesverband-niere.de) | ||
Christiane Mockenhaupt | Patient representative | |||
Francisco Monfort | Patient representative | https://ashua.es/ (aHUS) | ||
Mireya Vicenta Rios Carratala | Patient representative | ASHUA, Spain |