The workgroup for hereditary glomerulopathies covers the inherited, steroid-resistant forms of nephrotic syndrome (the "podocytopathies"), Alport and thin basement membrane syndrome (the "collagenopathies"), and rare metabolic disorders affecting the glomerulus (such as in Fabry disease).
Pediatric and adult nephrologists closely collaborate in the workgroup to provide the full expertise required to diagnose and treat these life-long disorders, which can manifest at highly variable age. The group works with expert geneticists from the Molecular Diagnostics Taskforce to ensure state-of-the-art diagnostics and family counseling. The workgroup aims to develop guidelines and pathways wherever needed for efficient management of these challenging disorders.
Besides harmonizing clinical management, the workgroup members are dedicated to develop an active research agenda to identify new disease causing genes, investigate genetic and biochemical markers predicting the likely course of the diseases, and embark in clinical trials exploring new therapies to stabilize or improve kidney function and slow down the progression to end-stage kidney disease.
Vanessa Merck | vanessa.merck@med.uni-heidelberg.de
Kalman Tory | Speaker |
Budapest, Hungary, Budapest Semmelweis University |
» Ped. center | |
Kathleen Claes | Co-Chair |
Leuven, Belgium, Leuven University Hospitals |
» Adult center | |
Guillaume Dorval | Co-Chair |
Paris, France, Paris Necker-Enfants Malades University Hospital |
» Ped. center | |
Antonia Bouts |
Amsterdam, Netherlands, Amsterdam Academic University Medical Center (AUMC) |
» Ped. center | ||
Elena Levtchenko |
Amsterdam, Netherlands, Amsterdam Academic University Medical Center (AUMC) |
» Ped. center | ||
Michiel Oosterveld |
Amsterdam, Netherlands, Amsterdam Academic University Medical Center (AUMC) |
» Ped. center | ||
Ans van Wijk |
Amsterdam, Netherlands, Amsterdam Academic University Medical Center (AUMC) |
» Ped. center | ||
Ioannis Boletis |
Athens, Greece, Athens Laiko General Hospital of Athens |
» Adult center | ||
Miquel Blasco |
Barcelona, Spain, Barcelona Hospital Clinic de Barcelona |
» Adult center | ||
Luis Quintana |
Barcelona, Spain, Barcelona Hospital Clinic de Barcelona |
» Adult center | ||
Montserrat Diaz Encarnacion |
Barcelona, Spain, Barcelona Hospital de la Santa Creu I Sant Pau and Fundacio Puigvert/IUNA |
» Adult center | ||
Monica Furlano |
Barcelona, Spain, Barcelona Hospital de la Santa Creu I Sant Pau and Fundacio Puigvert/IUNA |
» Adult center | ||
Helena Marco |
Barcelona, Spain, Barcelona Hospital de la Santa Creu I Sant Pau and Fundacio Puigvert/IUNA |
» Adult center | ||
Roser Torra |
Barcelona, Spain, Barcelona Hospital de la Santa Creu I Sant Pau and Fundacio Puigvert/IUNA |
» Adult center | ||
Alvaro Madrid |
Barcelona, Spain, Barcelona Hospital San Joan de Deu |
» Ped. center | ||
Loreto Gesualdo |
Bari, Italy, Bari AOU Consorziale policlinico di Bari-Ospedale Pediatrico Giovanni XXIII |
» Adult center | ||
Marica Giliberti |
Bari, Italy, Bari AOU Consorziale policlinico di Bari-Ospedale Pediatrico Giovanni XXIII |
» Adult center | ||
Kai-Uwe Eckardt |
Berlin, Germany, Berlin Charité - Universitätsmedizin Berlin |
» Adult center | ||
Jan Halbritter |
Berlin, Germany, Berlin Charité - Universitätsmedizin Berlin |
» Adult center | ||
Dominik Müller |
Berlin, Germany, Berlin Charité - Universitätsmedizin Berlin |
» Ped. center | ||
Markus Schueler |
Berlin, Germany, Berlin Charité - Universitätsmedizin Berlin |
» Adult center | ||
Irene Capelli |
Bologna, Italy, Bologna AOU Policlinico S. Orsola Bologna |
» Adult center | ||
Marisa Santostefano |
Bologna, Italy, Bologna AOU Policlinico S. Orsola Bologna |
» Adult center | ||
Lionel Couzi |
Bordeaux, France, Bordeaux University Hospital |
» Adult center | ||
Astrid Gordon-Dubrasquet |
Bordeaux, France, Bordeaux University Hospital |
» Ped. center | ||
Brigitte Llanas |
Bordeaux, France, Bordeaux University Hospital |
» Ped. center | ||
Claire Rigothier |
Bordeaux, France, Bordeaux University Hospital |
» Adult center | ||
Laura Econimo |
Brescia, Italy, Brescia ASST Spedali Civili Brescia |
» Adult center | ||
Claudia Izzi |
Brescia, Italy, Brescia ASST Spedali Civili Brescia |
» Adult center | ||
Karin Dahan |
Brussels, Belgium, Brussels Cliniques universitaires Saint-Luc - UCL |
» Adult center | ||
Nathalie Demoulin |
Brussels, Belgium, Brussels Cliniques universitaires Saint-Luc - UCL |
» Adult center | ||
Olivier Devuyst |
Brussels, Belgium, Brussels Cliniques universitaires Saint-Luc - UCL |
» Adult center | ||
Valentine Gillion |
Brussels, Belgium, Brussels Cliniques universitaires Saint-Luc - UCL |
» Adult center | ||
Nathalie Godefroid |
Brussels, Belgium, Brussels Cliniques universitaires Saint-Luc - UCL |
» Adult center | ||
Johann Morelle |
Brussels, Belgium, Brussels Cliniques universitaires Saint-Luc - UCL |
» Adult center | ||
Adrian Catalin Lungu |
Bucharest, Romania, Bucharest Fundeni Clinical Institute |
» Ped. center | ||
Nóra Ledó |
Budapest, Hungary, Budapest Semmelweis University |
» Adult center | ||
Ákos Pethő |
Budapest, Hungary, Budapest Semmelweis University |
» Adult center | ||
George Reusz |
Budapest, Hungary, Budapest Semmelweis University |
» Ped. center | ||
Péter Sallay |
Budapest, Hungary, Budapest Semmelweis University |
» Ped. center | ||
Péter Studinger |
Budapest, Hungary, Budapest Semmelweis University |
» Adult center | ||
Attila Szabo |
Budapest, Hungary, Budapest Semmelweis University |
» Ped. center | ||
András Tislér |
Budapest, Hungary, Budapest Semmelweis University |
» Adult center | ||
Jan Ulrich Becker |
Cologne, Germany, Cologne University Hospital |
» Ped. center | ||
Thomas Benzing |
Cologne, Germany, Cologne University Hospital |
» Adult center | ||
Kathrin Burgmaier |
Cologne, Germany, Cologne University Hospital |
» Ped. center | ||
Volker Burst |
Cologne, Germany, Cologne University Hospital |
» Adult center | ||
Christine Kurschat |
Cologne, Germany, Cologne University Hospital |
» Adult center | ||
Max Liebau |
Cologne, Germany, Cologne University Hospital |
» Ped. center | ||
Roman-Ulrich Mueller |
Cologne, Germany, Cologne University Hospital |
» Adult center | ||
Lutz Weber |
Cologne, Germany, Cologne University Hospital |
» Ped. center | ||
Dorota Drozdz |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Joanna Kwinta-Rybicka |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Monika Miklaszewska |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Anna Moczulska |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Iwona Ogarek |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Elżbieta Szczęsny-Choruz |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Katarzyna Wilkosz |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Katarzyna Zachwieja |
Cracow, Poland, University Children's Hospital of Cracow |
» Ped. center | ||
Peter J Conlon |
Dublin, Ireland, Dublin Beaumont Hospital |
» Adult center | ||
Declan DeFreitas |
Dublin, Ireland, Dublin Beaumont Hospital |
» Adult center | ||
Colm Magee |
Dublin, Ireland, Dublin Beaumont Hospital |
» Adult center | ||
Atif Awan |
Dublin, Ireland, Dublin Children`s Health Ireland (CHI) at Temple Street |
» Ped. center | ||
Janina Müller-Deile |
Erlangen, Germany, Erlangen University Hospital |
» Adult center | ||
Michael Wiesener |
Erlangen, Germany, Erlangen University Hospital |
» Adult center | ||
Thurid Ahlenstiel-Grunow |
Essen, Germany, Essen University Children`s Hospital |
» Ped. center | ||
Anja Büscher |
Essen, Germany, Essen University Children`s Hospital |
» Ped. center | ||
Rainer Büscher |
Essen, Germany, Essen University Children`s Hospital |
» Ped. center | ||
Lars Pape |
Essen, Germany, Essen University Children`s Hospital |
» Ped. center | ||
Francesca Becherucci |
Florence, Italy, Florence Meyer Children’s Hospital IRCCS |
» Ped. center | ||
Paola Romagnani |
Florence, Italy, Florence Meyer Children’s Hospital IRCCS |
» Ped. center | ||
Augusto Vaglio |
Florence, Italy, Florence Meyer Children’s Hospital IRCCS |
» Ped. center | ||
Irena Bałasz-Chmielewska |
Gdansk, Poland, Gdansk University Clinical Centre |
» Ped. center | ||
Magdalena Drozynska-Duklas |
Gdansk, Poland, Gdansk University Clinical Centre |
» Ped. center | ||
Beata Lipska-Zietkiewicz |
Gdansk, Poland, Gdansk University Clinical Centre |
» Ped. center | ||
Aleksandra Zurowska |
Gdansk, Poland, Gdansk University Clinical Centre |
» Ped. center | ||
Gianluca Caridi |
Genoa, Italy, Genoa Istituto Giannina Gaslini |
» Ped. center | ||
Francesca Lugani |
Genoa, Italy, Genoa Istituto Giannina Gaslini |
» Ped. center | ||
Joke Dehoorne |
Ghent, Belgium, Ghent UZ Ghent |
» Ped. center | ||
Lien Dossche |
Ghent, Belgium, Ghent UZ Ghent |
» Ped. center | ||
Agnieszka Prytula |
Ghent, Belgium, Ghent UZ Ghent |
» Ped. center | ||
Ann Raes |
Ghent, Belgium, Ghent UZ Ghent |
» Ped. center | ||
Steven Van Laecke |
Ghent, Belgium, Ghent UZ Ghent |
» Adult center | ||
Wim vanBiesen |
Ghent, Belgium, Ghent UZ Ghent |
» Adult center | ||
Johan Vande Walle |
Ghent, Belgium, Ghent UZ Ghent |
» Ped. center | ||
Jill Vanmassenhove |
Ghent, Belgium, Ghent UZ Ghent |
» Adult center | ||
Stefan Berger |
Groningen, Netherlands, Groningen University Medical Center |
» Adult center | ||
Charlotte Bootsma-Robroeks |
Groningen, Netherlands, Groningen University Medical Center |
» Ped. center | ||
Mark Eijgelsheim |
Groningen, Netherlands, Groningen University Medical Center |
» Adult center | ||
Casper Franssen |
Groningen, Netherlands, Groningen University Medical Center |
» Adult center | ||
Ron Gansevoort |
Groningen, Netherlands, Groningen University Medical Center |
» Adult center | ||
Valentina Gracchi |
Groningen, Netherlands, Groningen University Medical Center |
» Ped. center | ||
Esther Meijer |
Groningen, Netherlands, Groningen University Medical Center |
» Adult center | ||
Jan-Stephan Sanders |
Groningen, Netherlands, Groningen University Medical Center |
» Adult center | ||
Coen Stegeman |
Groningen, Netherlands, Groningen University Medical Center |
» Adult center | ||
Florian Grahammer |
Hamburg, Germany, Hamburg University Medical Center Hamburg-Eppendorf |
» Adult center | ||
Thomas Henne |
Hamburg, Germany, Hamburg University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
Tobias B. Huber |
Hamburg, Germany, Hamburg University Medical Center Hamburg-Eppendorf |
» Adult center | ||
Christian Krebs |
Hamburg, Germany, Hamburg University Medical Center Hamburg-Eppendorf |
» Adult center | ||
Sebastian Loos |
Hamburg, Germany, Hamburg University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
Anne Mühlig |
Hamburg, Germany, Hamburg University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
Jun Oh |
Hamburg, Germany, Hamburg University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
Jan-Hendrik Riedel |
Hamburg, Germany, Hamburg University Medical Center Hamburg-Eppendorf |
» Adult center | ||
Raphael Schild |
Hamburg, Germany, Hamburg University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
Dieter Haffner |
Hannover, Germany, Hannover Medical School |
» Ped. center | ||
Svjetlana Lovric |
Hannover, Germany, Hannover Medical School |
» Adult center | ||
Mario Schiffer |
Hannover, Germany, Hannover Medical School |
» Adult center | ||
Stefanie Haeberle |
Heidelberg, Germany, Heidelberg University Hospital |
» Ped. center | ||
Franz Schaefer |
Heidelberg, Germany, Heidelberg University Hospital |
» Ped. center | ||
Burkhard Toenshoff |
Heidelberg, Germany, Heidelberg University Hospital |
» Ped. center | ||
Agnes Trautmann |
Heidelberg, Germany, Heidelberg University Hospital |
» Ped. center | ||
Tanja Wlodkowski |
Heidelberg, Germany, Heidelberg University Hospital |
» Ped. center | ||
Tuula Hoelttae |
Helsinki, Finland, Helsinki Children´s Hospital, Helsinki University Hospital |
» Ped. center | ||
Timo Jahnukainen |
Helsinki, Finland, Helsinki Children´s Hospital, Helsinki University Hospital |
» Ped. center | ||
Juuso Tainio |
Helsinki, Finland, Helsinki Children´s Hospital, Helsinki University Hospital |
» Ped. center | ||
Friederike Petzold |
Leipzig, Germany, Leipzig University Hospital |
» Adult center | ||
Noel Knops |
Leuven, Belgium, Leuven University Hospitals |
» Ped. center | ||
Tanja Kersnik Levart |
Ljubljana, Slovenia, Ljubljana University Medical Centre |
» Ped. center | ||
Matjaž Kopač |
Ljubljana, Slovenia, Ljubljana University Medical Centre |
» Ped. center | ||
Anamarija Meglič |
Ljubljana, Slovenia, Ljubljana University Medical Centre |
» Ped. center | ||
Gregor Novljan |
Ljubljana, Slovenia, Ljubljana University Medical Centre |
» Ped. center | ||
Rina Rus |
Ljubljana, Slovenia, Ljubljana University Medical Centre |
» Ped. center | ||
Zeljka Veceric Haler |
Ljubljana, Slovenia, Ljubljana University Medical Centre |
» Adult center | ||
Agnieszka Gach |
Lodz, Poland, Lodz Instytut |
» Ped. center | ||
Monika Pawlak-Bratkowska |
Lodz, Poland, Lodz Instytut |
» Ped. center | ||
Małgorzata Stańczyk |
Lodz, Poland, Lodz Instytut |
» Ped. center | ||
Marcin Tkaczyk |
Lodz, Poland, Lodz Instytut |
» Ped. center | ||
Krzysztof Zeman |
Lodz, Poland, Lodz Instytut |
» Ped. center | ||
Aurelia Bertholet-Thomas |
Lyon, France, Lyon Hôpital Femme Mère Enfant & Université de Lyon |
» Ped. center | ||
Anne-Laure Sellier-Leclerc |
Lyon, France, Lyon Hôpital Femme Mère Enfant & Université de Lyon |
» Ped. center | ||
Giovanni Montini |
Milan, Italy, Milan IRCCS Ca' Granda Ospedale Maggiore Policlinico |
» Ped. center | ||
Martin Konrad |
Münster, Germany, Münster University Hospital |
» Ped. center | ||
Ilaria Luongo |
Naples, Italy, Naples A.O. Santobono-Pausilipon |
» Ped. center | ||
Gabriele Malgieri |
Naples, Italy, Naples A.O. Santobono-Pausilipon |
» Ped. center | ||
Luigi Annicchiarico Petruzzelli |
Naples, Italy, Naples A.O. Santobono-Pausilipon |
» Ped. center | ||
Ernie Bongers |
Nijmegen, Netherlands, Nijmegen Radboud UMC |
» Adult center | ||
Jeroen Deegens |
Nijmegen, Netherlands, Nijmegen Radboud UMC |
» Adult center | ||
Rutger Maas |
Nijmegen, Netherlands, Nijmegen Radboud UMC |
» Adult center | ||
Michiel Schreuder |
Nijmegen, Netherlands, Nijmegen Radboud UMC |
» Ped. center | ||
Jack Wetzels |
Nijmegen, Netherlands, Nijmegen Radboud UMC |
» Adult center | ||
Elisa Benetti |
Padua, Italy, Padua Azienda Ospedaliera di Padova |
» Ped. center | ||
Vincent Audard |
Paris, France, Paris APHP Hôpital Henri Mondor, Paris-Est Creteil |
» Adult center | ||
Dil Sahali |
Paris, France, Paris APHP Hôpital Henri Mondor, Paris-Est Creteil |
» Adult center | ||
Véronique Baudouin |
Paris, France, Paris Hospital Robert Debre |
» Ped. center | ||
Corinne Antignac |
Paris, France, Paris Necker-Enfants Malades University Hospital |
» Ped. center | ||
Lauréne Dehoux |
Paris, France, Paris Necker-Enfants Malades University Hospital |
» Ped. center | ||
Olivia Gillion-Boyer |
Paris, France, Paris Necker-Enfants Malades University Hospital |
» Ped. center | ||
Laurence Heidet |
Paris, France, Paris Necker-Enfants Malades University Hospital |
» Ped. center | ||
Bertrand Knebelmann |
Paris, France, Paris Necker-Enfants Malades University Hospital |
» Adult center | ||
Aude Servais |
Paris, France, Paris Necker-Enfants Malades University Hospital |
» Adult center | ||
Idalina Beirão |
Porto, Portugal, Porto Centro Hospitalar Universitário do Porto |
» Adult center | ||
Sofia Correia |
Porto, Portugal, Porto Centro Hospitalar Universitário do Porto |
» Adult center | ||
Liane Correia Costa |
Porto, Portugal, Porto Centro Hospitalar Universitário do Porto |
» Ped. center | ||
Luisa Lobato |
Porto, Portugal, Porto Centro Hospitalar Universitário do Porto |
» Adult center | ||
Josefina Santos |
Porto, Portugal, Porto Centro Hospitalar Universitário do Porto |
» Adult center | ||
Sofia Santos |
Porto, Portugal, Porto Centro Hospitalar Universitário do Porto |
» Adult center | ||
Martin Bezdicka |
Prague, Czech Republic, Prague University Hospital Motol |
» Ped. center | ||
Nadezda Simankova |
Prague, Czech Republic, Prague University Hospital Motol |
» Ped. center | ||
Dana Thomasova |
Prague, Czech Republic, Prague University Hospital Motol |
» Ped. center | ||
Jakub Zieg |
Prague, Czech Republic, Prague University Hospital Motol |
» Ped. center | ||
Francesco Emma |
Rome, Italy, Rome Bambino Gesù Children's Hospital |
» Ped. center | ||
Laura Massella |
Rome, Italy, Rome Bambino Gesù Children's Hospital |
» Ped. center | ||
Marina Vivarelli |
Rome, Italy, Rome Bambino Gesù Children's Hospital |
» Ped. center | ||
Rocco Baccaro |
Rome, Italy, Rome Gemelli Hospital |
» Adult center | ||
Giuseppe Grandaliano |
Rome, Italy, Rome Gemelli Hospital |
» Adult center | ||
Francesco Pesce |
Rome, Italy, Rome Gemelli Hospital |
» Adult center | ||
Margherita Baldassarri |
Siena, Italy, Siena University Hospital |
» Adult center | ||
Andrea Guarnieri |
Siena, Italy, Siena University Hospital |
» Adult center | ||
Anna Maria Pinto |
Siena, Italy, Siena University Hospital |
» Adult center | ||
Alessandra Renieri |
Siena, Italy, Siena University Hospital |
» Adult center | ||
Peter Barany |
Stockholm, Sweden, Stockholm Karolinska University Hospital |
» Adult center | ||
Peter Hemmingsson |
Stockholm, Sweden, Stockholm Karolinska University Hospital |
» Adult center | ||
Maria Herthelius |
Stockholm, Sweden, Stockholm Karolinska University Hospital |
» Ped. center | ||
Bogna Niwinska-Faryna |
Stockholm, Sweden, Stockholm Karolinska University Hospital |
» Ped. center | ||
Ariane Benezech |
Toulouse, France, Toulouse University Hospital |
» Ped. center | ||
Dominique Chauveau |
Toulouse, France, Toulouse University Hospital |
» Adult center | ||
Stephane Decramer |
Toulouse, France, Toulouse University Hospital |
» Ped. center | ||
Stanislas Faguer |
Toulouse, France, Toulouse University Hospital |
» Adult center | ||
Stephanie Tellier |
Toulouse, France, Toulouse University Hospital |
» Ped. center | ||
Luigi Biancone |
Turin, Italy, Turin AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | ||
Elena Boaglio |
Turin, Italy, Turin AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | ||
Manuel Burdese |
Turin, Italy, Turin AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | ||
Caterina Dolla |
Turin, Italy, Turin AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | ||
Roberta Giraudi |
Turin, Italy, Turin AOU Città della Salute e della Scienza di Torino - Molinette Hospital |
» Adult center | ||
Roberta Camilla |
Turin, Italy, Turin AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | ||
Bruno Gianoglio |
Turin, Italy, Turin AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | ||
Francesca Mattozzi |
Turin, Italy, Turin AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | ||
Licia Peruzzi |
Turin, Italy, Turin AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | ||
Silvia Pieretti |
Turin, Italy, Turin AOU CSS di Torino - Regina Margherita Hospital |
» Ped. center | ||
Emanuele de Simone |
Turin, Italy, Turin University of Torino-Ospedale HUB Torino Nord |
» Adult center | ||
Roberta Fenoglio |
Turin, Italy, Turin University of Torino-Ospedale HUB Torino Nord |
» Adult center | ||
Dario Roccatello |
Turin, Italy, Turin University of Torino-Ospedale HUB Torino Nord |
» Adult center | ||
Savino Sciascia |
Turin, Italy, Turin University of Torino-Ospedale HUB Torino Nord |
» Adult center | ||
Albertien vanEerde |
Utrecht, Netherlands, Utrecht University Medical Centre |
» Ped. center | ||
Rimante Cerkauskiene |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Ped. center | ||
Augustina Jankauskiene |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Ped. center | ||
Agne Kerpauskiene |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Adult center | ||
Marius Miglinas |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Adult center | ||
Arturas Vinikovas |
Vilnius, Lithuania, Vilnius University Hospital Santaros Klinikos |
» Adult center | ||
Daniel Gale | External | Royal Free London | ||
Rachel Lennon | External | Manchester, Manchester University Foundation Trust | ||
Sergio Camilo Lopez Garcia | External | London, Great Ormond Street Hospital | ||
Susana Carvajal Arjona | Patient representative | http://hipofam.org/ (Hypomagnesemia) | ||
Rossella Ferrari | Patient representative | Associazione Sindrome di Alport Odv | ||
Uwe Korst | Patient representative | Bundesverband Niere e.V. (Bundesverband-niere.de) | ||
Johanna Rohlfing | Patient representative | Nephie e.V./ Idiopathisches Nephrotisches Syndrom | ||
Katerina Romanenkoev | Patient representative | |||
Ana Leticia Rotaeche | Patient representative | AIRG Spain | ||
Heidi Zealey | Patient representative | Alport UK |